The
Foundation

The International FOXP1 Foundation is a registered non-profit organization that is managed and operated by parent volunteers. We are committed to supporting those around the world who have been impacted by FOXP1 syndrome. The foundation supports researchers to further our understanding of FOXP1 and to identify possible treatments.

 

We have created a repository of information on symptoms, characteristics, and behavior patterns unique to our FOXP1 children, as well as best practices and the therapies that could enhance quality of life.  As the scientific community expands their knowledge on FOXP1, so will our repository of information grow.  

 

The foundation has established several venues for families and researchers to share ideas and develop connections within our community.  Monthly on-line events provide an opportunity for members from different corners of the globe to share ideas. Our Ambassador program provides leadership and local support within each country. Bi-annual family conferences provide an opportunity for the international community to meet other families create relationships, and learn from research experts.  Bi-annual research conferences provide a trusted environment in which experts share their research and clinical experiences, and make connections with others working in the field,  These activities can only be achieved when we have successful fundraising, and an enthusiastic team of volunteers.  The foundation is only as strong as our volunteer base, please email info@foxp1.org if you would like to get involved.

​​​