Past Events
Recordings of past events of the International FOXP1 Foundation are posted here. There is a combination of webinars, zoom meetings, and in-person conference presentations by the foundation, family members, and the scientific/medical community. The most current event is posted at the top of the page.
AAV Gene Therapy with Dr Konopka 25 July 2024
Language development related to FOXP1 Dr Ruth Braden
Genetics & Medication related to FOXP1 Dr Alex Kolevzon
Introduction to Managing Behaviour in Individuals with Neurodevelopmental Disabilities Dr Cora T
AAV Gene Therapy with Dr Genevieve Konopka
Zoom Meeting July 25, 2024
Dr. Genevieve Konopka, UT Southwestern Medical Center, is a leading world expert on the FOXP1 gene. She explained the FOXP1 gene therapy experiment her team is completing this year.
2023 Family Conference
Long Island New York, United States, June 2023
The 4 presentations from the 2023 Family Conference are posted here:
Dr. Alex Kolevzon "New Frontiers in Treatment for Neurodevelopmental Disorders"
Clinical Director Seaver Autism Center for Research and Treatment.. Professor Psychiatry and Professor Pediatrics
Dr. Ruth Braden "Language development related to FOXP1"
Early Career Academic, The University of Melbourne; Postdoctoral Research Fellow, Speech and Language Group, Murdoch Children’s Research Institute
Dr. Cora Taylor "Managing Behaviour in Individuals with Neurodevelopmental Disabilities"
Assistant professor and clinical psychologist at Geisinger Autism & Developmental Medicine
Sandra M. Gumerove
Attorney at Law. Serving individuals and families with special needs in Long Island, New York.
International FOXP1 Foundation 3rd Open House
Zoom meeting, February 19, 2024
The International FOXP1 Foundation (IFF) hosted their third Open House zoom meeting, like past years it is open to all members of the FOXP1 international community. In 2023 160 people, attended the Family Conference in Long Island NY. There were 35 foxes together, the largest gathering we have had. This coming year our focus is research of the FOXP1 gene. You can learn more about our plans by watching the video.
International FOXP1 Foundation 2nd Open House
Zoom meeting, February 18, 2023
The International FOXP1 Foundation (IFF) hosted their second Open House zoom meeting, open to all members of the FOXP1 international community. The Board of Directors presented what has been achieved in the past year, and what is planned for the coming year, including information on the RareX Data Collection project and the Family Gathering conference June 2023 in Long Island NY. Questions were answered at the end of the presentation.
Healthy Eating for FOXP1 Families
Webinar, July 9, 2022
Chardell Buchanan, registered dietitian nutritionist and coach, shared her advise on how to make it easy to prepare healthy meals and snacks for your family. She talks about importance of a balanced diet with many good tips on how to incorporate whole grains, fibres, omega-3, vitamins and water in your families diet. To learn more about Chardell's dietary tips check out her website www.ChardellBuchanan.com
RARE-X Introduction Data Collection Program
Zoom meeting, March 13, 2022
The International FOXP1 Foundation (IFF) has partnered with RARE-X to establish a Data Collection program. RARE-X introduces families to the value and benefits of contributing; database security and architecture of the system; and the process to enroll in the program. Questions were answered at the end of the presentation.
International FOXP1 Foundation 1st Open House
Zoom meeting, January 16, 2022
The International FOXP1 Foundation (IFF) hosted their first Open House zoom meeting, open to all members of the FOXP1 international community. The Board of Directors presented what has been achieved in the first year of the foundation, and what is planned for the coming year. Questions were answered at the end of the presentation.
Day of Learning on FOXP1 Syndrome, Seaver Centre
Zoom meeting, September 23, 2021
The Seaver Autism Centre for Research, presented the Day of Learning on FOXP1 Syndrome. The presentation was designed to update the community about advances in the Seaver Center’s multi-level research in stem cells, rodent models, and clinical studies currently being done on FOXP1.
FOXP1 Community Webinar with Seaver Autism Centre and RareConnect
Webinar, July 8, 2016
A team of researchers at the Seaver Autism Center at the Icahn School of Medicine at Mount Sinai in New York has been providing evaluations and clinical research for families of other genetic syndromes for some time now, and has recently begun working with FOXP1 families. In this RareConnect webinar, we will have a chance to hear from these investigators and to ask them questions about their work, how it could benefit us and their future plans for FOXP1 research.