Events

The International FOXP1 Foundation hosted a call for families affected by FOXP1 Syndrome, featuring Drs. Henning Frohlich and Gudrun Rappold from Heidelberg University. They discussed their research on the potential benefits of a PDE10A inhibitor for individuals with FOXP1 Syndrome. This research is partially funded by the Foundation. The event will included a brief presentation by Dr. Frohlich, covering past, current, and future research developments, followed by an open Q&A session for families.

Dr. Genevieve Konopka, UT Southwestern Medical Center, is a leading world expert on the FOXP1 gene. She explained the FOXP1 gene therapy experiment her team is completing this year.

17 Feb 2024 International FOXP1 Foundation annual Open House zoom meeting. The board members report what the foundation did last year, and what their plans are for the coming year.

Zoom meeting, March 13, 2022 The International FOXP1 Foundation (IFF) has partnered with RARE-X to establish a Data Collection program. RARE-X introduces families to the value and benefits of contributing; database security and architecture of the system; and the process to enroll in the program. Questions were answered at the end of the presentation.

Dr Ruth Braden, Early Career Academic, The University of Melbourne; Postdoctoral Research Fellow, Speech and Language Group, Murdoch Children’s Research Institute. Presentation at the International FOXP1 Foundation Family Conference June 2023.

Dr Alex Kolevzon, Clinical Director Seaver Autism Center for Research and Treatment. Professor Psychiatry and Professor Pediatrics presentation at the International FOXP1 Foundation Family Conference 2023

Dr Cora Taylor, Assistant professor and clinical psychologist at Geisinger Autism & Developmental Medicine, her presentation at the International FOXP1 Foundation Family Gathering 2023

Sandra M Gumerove, Attorney at Law. Serving individuals and families with special needs in Long Island, New York. presentation at the International FOXP1 Foundation Family Conference 2023.

A team of researchers at the Seaver Autism Center at the Icahn School of Medicine at Mount Sinai in New York has been providing evaluations and clinical research for families of other genetic syndromes for some time now, and has recently begun working with FOXP1 families. In this RareConnect webinar, we will have a chance to hear from these investigators and to ask them questions about their work, how it could benefit us and their future plans for FOXP1 research. Download the slides and meet other families with FOXP1: https://www.rareconnect.org/en/community/foxp1/article/foxp1-community-webinar