Zoom Call with Families | Toward Clinical Trial Readiness with FoxP1 Syndrome
Sun, Apr 27
|Zoom Meeting
Please join us for a 90-minute call on 3 important initiatives of the International FOXP1 Foundation to establish clinical trial readiness for FOXP1 Syndrome. All three of the projects require patients to volunteer, so this will likely be our most important call of the year!
Date & Time
Apr 27, 2025, 2:00 PM – 3:30 PM EDT
Zoom Meeting
About The Event
Please join us for a 90-minute call on 3 important initiatives of the International FOXP1 Foundation to establish clinical trial readiness for FOXP1 Syndrome. All three of the projects require patients to volunteer, so this will likely be our most important call of the year!
• Dr. Mara Cowen (Duke University) will present on our collaboration with Citizen Health. Mequel Bunch from Citizen will join us to answer questions and a live sign-up demonstration to show how quick and simple the process is.
• Dr. Paige Siper (Seaver Autism Center) will discuss her clinical project on developing a CGI scale for FOXP1 Syndrome, with a view toward future use in trials for the FDA and other regulatory agencies.
• Dr. Rujuta Wilson (UCLA Medical School) will discuss her clinical project on characterizing the phenotype of FOXP1 Syndrome through a natural history study.
Thank you for your time and interest. Together, we are building the foundation for the development of treatments for FOXP1 Syndrome.