Newly Diagnosed
We are so glad you've found our website. Whether you are a family member, caregiver, or healthcare professional, we hope this information helps you better understand FOXP1 syndrome. As parents of children with FOXP1 syndrome, we know the struggle to understand this condition, especially when one first receives the diagnosis. The International FOXP1 Foundation is here to provide resources, guidance, and support to help you through this journey.
Every individual with FOXP1 syndrome follows a unique path, shaped by their own strengths and obstacles. Our children inspire us daily with their incredible resilience, and the families who walk this journey are the true experts, showing us firsthand the true meaning of perseverance, hope, and unconditional love.
Below are the steps we encourage families to take after they receive their diagnosis: