top of page

Creating a Future with Endless Possibilities

The Body Focused Repetitive Behaviour Study

has been published

Thank you to all 70 families that participated in this study last summer.  Your contributions have helped all of us better understand our loved ones with FOXP1 Syndrome 

Concrete Wall

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, encouraging research, and raising awareness.

Map

OUR FOX FAMILIES

"While there is still so much unknown and no real changes in our day-to-day life with the diagnosis, it was a relief to have an answer and explanation for everything about Joey that had felt "off". It is amazing to feel the support from the other families and to know we are not alone."

bottom of page